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Responding to the person: Dementia behaviour support and beyond

Bethany Kings (National Program Manager), Marie Alford (Head of Dementia Professional Services)

DSA Dementia Support Australia

They say change is inevitable, and also that change can be slow. That is, until there is a crisis. We have seen how the impetus of a pandemic and aged care reform has challenged the pace of change and has pushed us to creatively adapt processes, communication channels, systems and funding mechanisms to meet the immediate health demands.

Dementia Support Australia (DSA) is not immune to this change as we seek to support a sector in flux. One strength of the service is our ability to pivot in response to the surrounding landscape. Whilst our core business is to support people living with dementia where behaviour impacts care, the way this is undertaken has evolved since the inception of DSA in 2016.

At the beginning of COVID-19, access to residential care homes was limited. However, with a cocktail of reduced visitation, changed routines, staff in masks, goggles, gowns and gloves, and constantly changing staff, the need for DSA support only grew. Out of this came the Dementia Engagement Modelling Program (DEMP) and greater utilisation of our brokerage services. Engagement continues to be a core focus within our work.

With the implementation of Royal Commission recommendations came the strengthening of behaviour support plans and an overdue focus on reducing restrictive practices. The sector needed guidance but, more importantly, support. With our expertise in non-pharmacological approaches to behaviour management, DSA sought to understand the regulations and published our Behaviour Support Plan resources to help providers build their plans and bring them to life. We consider this a work in progress, with care providers facing previously unseen workforce challenges.

Our focus has been drawn more recently to the outcome of increased regulation and workforce issues further impacting care transitions, particularly from the hospital. We have been piloting the Acute to Residential Care Transition program, designed to understand some of the complex factors that lead to ‘bed block’ and offer policy and practice development. DSA has been supporting General Practitioners who care for people with behaviours and psychological symptoms of dementia through the GP Advice Service, offering opportunities to talk with our medical specialists about prescribing and de-prescribing, and introducing Dementia Support Coaches in response to feedback that on the ground modelling of behaviour support is the most effective way to effect change.

With the current aged care workforce shortages, the aging population, rising costs and continuing reforms, we are working to make our recommendation reports more streamlined and accessible to front-line staff, taking it to single concepts, using different mechanisms to deliver interventions. But we need your help to ensure this meets the diverse needs of the sector. We have a strong and stable vision focussing on holistic, seamless, borderless support consistently delivered with respect to local geographic context. Knowing the person is the foundation of everything we do as we build recommendations and interventions in partnership with those who provide care.

Funded by the Australian Government, call DSA on 1800 699 799 or head to the DSA website; we are here to help.

 

*The views and opinions expressed in Knowledge Blogs are those of the authors and do not necessarily reflect those of ARIIA, Flinders University and/or the Australian Government Department of Health and Aged Care.

Dr Prabhat Adhikari

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Dr. Prabhat Adhikari is a physician, entrepreneur, and healthcare reform activist with a keen interest in medical IT and research. During his super-specialization in Infectious Diseases and Critical Care in the USA, he had an epiphany about the dire need to revolutionize the healthcare system in third-world countries by leveraging cutting-edge technologies.

Dr. Nanda Kumar B S

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Dr. B.S. Nanda Kumar is an accomplished medical professional and researcher. I have earned an MD in Community Medicine, DNB in Community Medicine, and a Post Graduate Health and Hospital Management Diploma. Currently, I hold the positions of Associate Dean of Research at Ramaiah University of Applied Sciences and Head of Research & Intellectual Property Rights at M.S. Ramaiah Medical College. My areas of research include primary healthcare, telemedicine, public health informatics, and health technology development.

Prof. Meghashyam Bhat

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Prof. Meghashyam Bhat is a dental academic with Ph.D. in Dentistry (Oral Epidemiology) and a Masters qualification in Community Dentistry and Public Health. He has been in academia for over two decades and has been heavily involved in teaching and research. He is currently Professor (full) of Public health dentistry at Sharavathi Dental College and Hospital, affiliated to the Rajiv Gandhi University of Health Sciences, Bengaluru. His research interests are Oral Epidemiology, Public Health & Ageing.

Dr Lakshmi Balraj

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Dr Lakshmi Balraj is an oral medicine and maxillofacial radiologist, currently serving as the Chief Officer and Head – Research, APJ ERIC, Indian Dental Association (HO, Mumbai). Also pursuing her PhD in International Health, Maastricht University, Netherlands, her research based on understanding the oral health policies and their implementation in developing economies. Also associated as an oral oncology consultant to various hospitals in Mumbai.

Dr Kejal Hasmukharay

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Dr Kejal Hasmukharay is a geriatrician in University Malaya Medical Centre, Kuala Lumpur, Malaysia. She is an early career researcher with interest in aging, aged care, immunosenescence and cognitive frailty. She has also worked closely with non-governmental organizations and the long-term care industry to advocate for improvement in health of older persons especially during the pandemic. She possesses a strong desire to contribute to the advancement of aged care and long-term care services in Malaysia which is in its infancy with numerous political, structural and cultural challenges.

PHR. Kabin Maleku

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I am Kabin Maleku, a pharmacist with a Master's degree. I have made remarkable contributions to Nepal's pharmaceutical and healthcare sectors. With experience in clinical research, regulatory affairs, and healthcare institution development, I have played a pivotal role in executing projects, developing products, and conducting market research. 

Prof. MA. Teresa Tricia G. Bautista, MD

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Tricia is a dynamic leader in the health profession with decades of hands-on initiatives in fast-paced hospital and community environs in the field of clinical medicine and research.

From inception, she established family medicine residency training programs and palliative care services. In recent months, she has been setting up geriatric centers and fellowship programs as mandated by the national health agenda. She is committed to teaching medical students and residents over the last 20 years with focus on promoting age-friendly care.