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Making Knowledge Visible

Professor Jennifer Tieman

Director, Knowledge and Implementation Hub & Professor, Palliative and Supportive Services
ARIIA, Flinders University

The new Aged Care Centre for Growth and Translational Research, or ARIIA, has an important role in supporting transformational change in aged care by addressing critical issues relating to evidence, partnership, growth, and translation. There has been much written about the need for change and there is a significant reform agenda that is in place. This runs alongside a period of great stress for the sector as it confronts the reality of Covid-19 as well as workforce and business challenges.

Introducing new programs and resources in this context is not easy. The Knowledge and Implementation Hub is a core part of ARIIA and will act as a central point in bringing together evidence and practical resources that address major issues for the aged care sector. This connection to the sector is important if resources are to be relevant and meaningful. The first four aged care priority topics the Hub has developed were identified in a survey open to aged care consumers, workforce, providers, and industry partners.

The priority topics identified which now have resources are:

So how do you create meaningful resources for such important topics which also encourage use? This was the challenge facing the Knowledge and Implementation Hub project team. We knew it was not sufficient to just provide academic evidence summaries although we knew that solid evidence should underpin translational change and growth. Evidence also needs to be actionable and useful. The strategic approach we have taken can be outlined as follows:

  • Working with the sector to find out what topics are most important to them
  • Using best practice methods to search for, appraise, and synthesise the evidence we find
  • Undertaking a scoping review of the published research evidence and an environmental scan for practical tools and resources for each aged care topic
  • Working with an expert advisory group of end users, aged care staff, and content experts who understand the topic, can assess the quality and value of the evidence, and consider its relevance to the aged care sector
  • Creating online resources that are accessible, interesting, and mobile
  • Setting up an integrated knowledge resource and knowledge dissemination framework to support movement of the knowledge into the sector
  • Building in feedback loops and opportunities for participation.

We are fortunate to have been able to bring to ARIIA and the Knowledge and Implementation Hub, strengths and expertise that has been developed in establishing CareSearch and palliAGED. These are major projects being delivered through the Research Centre for Palliative Care, Death and Dying (RePaDD) at Flinders University. Importantly this prior experience has been instrumental in developing frameworks and quality processes for evidence retrieval and synthesis, online delivery, and digital translation in the new centre.

The next two years will see a rapid expansion in the aged care topics available to support the sector as well as new resources which will provide evidence and resources that support translational and growth issues. To achieve this, we need to bring together evidence, partnership, translation and growth and we invite you to get involved.
 

The views and opinions expressed in Knowledge Blogs are those of the authors and do not necessarily reflect those of ARIIA, Flinders University and/or the Australian Government Department of Health and Aged Care.

A New Model of Providing Emotional Support to Residents, Families, and Staff in Residential Aged Care

Dr Joanna Waloszek

Research Project Manager of the Elders AT Ease (ELATE) Program
Swinburne University of Technology

By 2060, 23% of Australians will be aged 65 or older. [1] We know that mental health problems, such as depression and anxiety disorders, are often observed in this age group. A recent report shows that almost 60% of those living in residential aged care have a mental health diagnosis. [2] With approximately 200,000 people living permanently in residential aged care facilities in Australia, we are not prepared for addressing this need for emotional support services.

Providing non-pharmacological mental health services in residential aged care settings comes with its own unique set of challenges which can be hard to overcome. Aged care staff often do not have the time and skills to identify mental health problems in residents. Even in situations where residents have been referred, they have numerous health problems making travel to outpatient services too difficult. There is also a shortage in mental health practitioners who have the skills to work in aged care settings. [3] So, what can be done to improve the situation in the immediate and long-term?

Led by Professor Sunil Bhar, director of the Swinburne Wellbeing Clinic of Older Adults, The Elders AT Ease (ELATE) Program team aims to address some of these concerns. [4] The ELATE program examines the effectiveness of an innovative outreach mental health program for reducing depression and anxiety, as well as improving the quality of life of residents in residential aged care settings. Funded by the National Health and Medical Research Council and Beyond Blue, this study has already enrolled over 150 residents in more than 50 Victorian residential aged care facilities.

We recognise that residential aged care facilities are not silos but rather a community of members including staff, residents, and their families. To have the greatest impact, the program involves a systemic treatment approach involving this whole community. Supervised postgraduate psychology students provide one-to-one emotional support sessions to residents weekly over 16 weeks using cognitive behavioural and reminiscence therapy. In addition, family members and facility staff are offered support and training workshops to better identify and manage depression and anxiety symptoms in residents through facilitated workshops.

The study provides an immediate, free, and accessible service to residents. It addresses the need to improve the training of the next generation of psychologists and aged care staff in recognising and responding to the mental health care needs of the resident. It also addresses the need to involve families in meaningful ways to assist their relatives living in residential care.

This study will help us understand the health, personal and economic outcomes of cognitive behavioural and reminiscence therapy for our elders living in residential aged care settings. It will also provide a blueprint for mental health service delivery in such settings.

The program will continue to enrol new participants until mid-2023. Results of the study will be analysed and made available once the trial has finished in 2024. Please contact elateprogram@swin.edu.au or jwaloszek@swin.edu.au for more information.
 

The views and opinions expressed in Knowledge Blogs are those of the authors and do not necessarily reflect those of ARIIA, Flinders University and/or the Australian Government Department of Health and Aged Care.

1. Australian Government Department of the Treasury. 2021 Intergenerational report: Australia over the next 40 years [Internet]. Canberra: Government of Australia; 2021 [cited 2022 Aug 3]. Available from: https://treasury.gov.au/sites/default/files/2021-06/p2021_182464.pdf

2. Amare AT, Caughey GE, Whitehead C, Lang CE, Bray SC, Corlis M et al. The prevalence, trends and determinants of mental health disorders in older Australians living in permanent residential aged care: Implications for policy and quality of aged care services. Aust N Z J Psychiatry. 2020 Dec;54(12):1200-1211. doi: 10.1177/0004867420945367.

3. Bhar S, Koder D, Jayaram H, Davison T, Knight B, Laidlaw K. Innovative approaches for long term care. In: Asmundson GJG, editor. Comprehensive clinical psychology. 2nd ed. Elsevier; 2022. p. 311-327.

4. The Wellbeing Clinic for Older Adults, Swinburne University of Technology. Wellbeing clinic for older adults [Internet]. 2022 [cited 2022 Aug 3]. Available from: https://www.swinburne.edu.au/research/centres-groups-clinics/wellbeing-clinic/

HOW-R-U? Implementing a Sustainable Social-Support Program that Promotes Wellbeing for All During and Following COVID-19

Ms Elizabeth Robinson, Dr Marissa Dickins, Ms Lina Lad and Professor Judy Lowthian

Bolton Clarke Research Institute

The public health concern surrounding social isolation and loneliness has been heightened by the COVID-19 pandemic.

Prior to the pandemic one in four Australian adults experienced loneliness, [1] which is associated with negative health outcomes on par with smoking, affecting mental, cognitive and physical health. Infection prevention measures including stay-at-home orders have been effective but have led to increased feelings of loneliness and depression here in Australia [2] and worldwide. [3,4,5,6] HOW-R-U? is a volunteer-delivered social support telephone program that has been shown to effectively reduce feelings of isolation, loneliness, and depression in recently hospitalised older patients. [7]

The HOW-R-U? program was rapidly implemented early in the COVID-19 pandemic across Bolton Clarke, an Australian aged and community care service, and Northern Health, an acute health service. This involved ongoing co-design with both services to ensure the program was fit-for-purpose and met the demands of the ever-changing situation.

Evaluation of implementation involved analysis of (a) program data including referral, program uptake, and call log information; (b) pre- and post- symptoms of isolation, depression, and loneliness; and (c) semi-structured interviews and surveys with patients, volunteers, and front-line staff referrers.

Findings indicate the systems and processes developed effectively supported ongoing implementation and transition into business as usual. Over the 18-month implementation period, (23/6/20-31/12/21), 227 referrals were received. The 156 people enrolled in HOW-R-U? received 1,238 calls (median length 24 mins) from 83 volunteers. A subgroup consented to research participation (median age = 77.5 years (IQR = 11.7), 52.2% female). Reductions in loneliness and risk of social isolation, of 3.3% and 25.3% respectively, were recorded while depressive symptoms increased by 33.3%. These results are likely to have been influenced by various COVID-19 restrictions across the study period.

All referrers, volunteers and participants surveyed indicated they believed that HOW-R-U? should continue with benefits reported by all stakeholders. Participants felt supported, with one telling us ‘It is empowering to talk to someone when you’re down and know that you’re not alone.’ Some participants reported developing deep intergenerational relationships, with one participant saying her HOW-R-U? calls were like ‘talking to a daughter.’ Similarly, volunteers reported ‘There is something in it for the people we ring, but a lot more in it for the volunteers.’

More than 200 clients and residents have now been connected with around 90 volunteers with similar interests, drawn from across the organisation including senior executive management, for a weekly 20–30-minute support phone call. Clients say the weekly call is a highlight and the program continues to deliver strong results and improve wellbeing.

A range of enablers and barriers to implementation have informed successful implementation into business as usual at both services.

The views and opinions expressed in Knowledge Blogs are those of the authors and do not necessarily reflect those of ARIIA, Flinders University and/or the Australian Government Department of Health and Aged Care.

1. Lim MH. Australian Loneliness Report: A survey exploring the loneliness levels of Australians and the impact on their health and wellbeing [Internet]. 2018 [cited 2022 Jul 29]. Available from: https://psychweek.org.au/wp/wp-content/uploads/2018/11/Psychology-Week-2018-Australian-Loneliness-Report.pdf.

2. Rossell SL, Neill E, Phillipou A, Tan EJ, Toh WL, Van Rheenen TE, Meyer D. An overview of current mental health in the general population of Australia during the COVID-19 pandemic: Results from the COLLATE project. J. Psychiatr. 2021;296:113660. doi: 10.1016/j.psychres.2020.113660.

3. Office for National Statistics. Mapping loneliness during the coronavirus pandemic [Internet]. 2021 [cited 2022 Jul 29]. Available from: https://www.ons.gov.uk/peoplepopulationandcommunity/wellbeing/articles/mappinglonelinessduring
thecoronaviruspandemic/2021-04-07

4. Pérez S, Masegoso A, Hernández‐Espeso N. Levels and variables associated with psychological distress during confinement due to the coronavirus pandemic in a community sample of Spanish adults. Clin Psychol Psychother. 2021;28(3):606-14. doi: 10.1002/cpp.2523.

5. Klaiber P, Wen JH, DeLongis A, Sin NL. The ups and downs of daily life during COVID-19: Age differences in affect, stress, and positive events. J Gerontol B Psychol Sci Soc Sci. 2021;76(2):e30-7. doi: 10.1093/geronb/gbaa096.

6. McGinty EE, Presskreischer R, Han H, Barry CL. Psychological distress and loneliness reported by US adults in 2018 and April 2020. JAMA. 2020;324(1):93-4. doi: 10.1001/jama.2020.9740.

7. Lowthian JA, Lennox A, Curtis A, Wilson G, Rosewarne C, Smit De V, O’Brien D, Browning C, Boyd L, Smith C, Cameron PA. HOspitals and patients WoRking in Unity (HOW R U?): Telephone peer support to improve older patients’ quality of life after emergency department discharge – a feasibility study. BMJ Open 2018;8(6):e020321. doi: 10.1136/bmjopen-2017-020321.